cystinuria.org
cystinuria.org is the official site of the International Cystinuria Foundation, a long-established 501(c)(3) nonprofit providing patient education and research resources for the rare genetic disorder cystinuria.
At a glance
3 facts that matterThe Dossier
The site presents itself as the informational hub for the International Cystinuria Foundation, offering medical explanations, diet guidance, research updates, and awareness-day advocacy for people affected by cystinuria. Its 23.7-year domain age, active Colorado 501(c)(3) registration, and clean security profile align with a legitimate patient-support organization rather than any deceptive operation.
Site Purpose and Content
The homepage positions cystinuria.org as the online presence of the International Cystinuria Foundation (ICF). It supplies plain-language explanations of the inherited condition, symptom and diagnosis information, dietary advice, treatment options, prevention tips, and links to ongoing research. Visitors can also read personal stories, check cystinuria-related news, and learn how to advocate for official state recognition of Cystinuria Awareness Day.
Operator Identity
Business records confirm the ICF is a Colorado-based 501(c)(3) nonprofit incorporated in 2005 and granted tax-exempt status in 2006. The domain itself was registered in October 2002 and has remained under the same registrar without privacy masking. The foundation is cited by medical institutions and listed among recognized resources by the National Organization for Rare Disorders.
Technical and Security Profile
No antivirus engine flagged the site, browser blocklists show it as clean, and the hosting IP carries a zero abuse score. The SSL certificate is valid and issued by Let's Encrypt. The page contains no login forms, countdown timers, or push-notification prompts. External resources loaded are limited to standard fonts, analytics, and social widgets.
Visitor Experience
Navigation is straightforward, with clear sections for learning about the disease, accessing resources, reading news, and contacting the organization. The design uses professional imagery and consistent branding appropriate for a health nonprofit. No deceptive overlays or urgency tactics are present.
Safe to visit for information on cystinuria and the work of the International Cystinuria Foundation.
Website Preview
The website appears to be a legitimate, professionally designed informational portal for a health foundation.
- 1Professional website design for a non-profit health organization
- 2Clear navigation menu and branding present
- 3High-quality imagery consistent with the stated mission
Web Research
This is the best website for information concerning the disease, as well as ways to donate to the community!
The International Cystinuria Foundation (ICF) is a Colorado-based 501(c)(3) non-profit organization.
Cystinuria.org is the official website of the International Cystinuria Foundation (ICF), a 501(c)(3) non-profit organization.
The organization was incorporated in 2005 and received tax-exempt status in 2006; the domain has been active since 2002.
The site provides educational resources, research information, and support for individuals with cystinuria, a rare genetic metabolic disorder.
The foundation is recognized by medical and research institutions, including the National Organization for Rare Disorders (NORD) and various university medical centers.
Threat Detection
Technical Details
Identity›
- Operator
- Identified
- On-domain email
- Not observed
- Phone
- Present
- Address
- Not observed
Domain›
- Status
- 24 years old
- Registration
- Registered Oct 20, 2002
- Encryption
- Valid TLSv1.3
- Certificate issuer
- Let's Encrypt · YR1
Infrastructure›
- Network address
- 151.101.130.159
- Hosting organization
- Fastly, Inc.
- Country
- US
- Server
- Flywheel/5.1.0
Connections›
- Redirects
- 1
- Cross-domain redirect
- No
- Referenced domains
- 6
- Final destination
- https://cystinuria.org/
What to do
Safe to visit for information on cystinuria and the work of the International Cystinuria Foundation.
If you paid, contact your bank or payment provider immediately and preserve receipts and messages. If you shared personal information, monitor the affected accounts and change any reused passwords through the official service.
Final Verdict
Safe. The domain belongs to a verified U.S. nonprofit health organization with a 23-year history and no malicious indicators.
Safe to visit for information on cystinuria and the work of the International Cystinuria Foundation.
Safety FAQ
Is cystinuria.org safe to use?+
Safe. The domain belongs to a verified U.S. nonprofit health organization with a 23-year history and no malicious indicators.
What should I do about cystinuria.org?+
Safe to visit for information on cystinuria and the work of the International Cystinuria Foundation.
How old is cystinuria.org?+
cystinuria.org is 24 years old and was registered oct 20, 2002.
What if I already interacted with cystinuria.org?+
If you paid, contact your bank or payment provider immediately and preserve receipts and messages. If you shared personal information, monitor the affected accounts and change any reused passwords through the official service.
When was this report updated?+
This report reflects the scan completed July 17, 2026 at 9:04 PM UTC.
User reviews & comments(0)
Share your experience — "Lost $200 on a fake checkout" is more useful than "Scam". Your review helps others avoid traps.